Usher Syndrome: A psychosocial literature overview

Usher Syndrome DbS Lit Review v. June 26.pdf

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This new paper provides a meaningful and informative resource on the psychosocial literature on Usher Syndrome.

Building on existing reviews, it focuses on key themes—such as emotional wellbeing, identity, social support, and future planning—and what they mean for real‑world support and services, drawing on a wide range of research and lived experience.

Taking a psychosocial perspective, this overview considers Usher Syndrome holistically across the life span. With this focus, papers addressing the impact of Usher Syndrome and dual sensory loss on emotional wellbeing, identity and self-perception, social and support needs, and uncertainty and future planning are synthesised.