Do you have sight loss and hearing loss, or are you a carer, family member or friend of someone who does? COME ALONG AND MEET US!! Following the successful campaign to have deafblindness recognised as a distinct disability and the Scottish Government’s adoption of the Nordic Definition, Deafblind Scotland is working to ensure the experiences of people living with combined sight and hearing loss help shape future support and services. As part of a Scotland-wide engagement

We were delighted to support DBUK in Northern Ireland to explore joining Scotland and of course the rest of the UK in formally recognising Deafblindness as a distinct disability. Good luck to our friends over the Irish Sea. Photos shows Robbie butler MLA and Deafblind people from Northern Ireland sitting beside our CEO at the end of the table.

Isabella and Andrena were delighted to meet Deafblind colleagues from New South Wales yesterday. Stephen Hailinsn and Alisha Cooper were in Glasgow to present at a Community Development conference at the University of Glasgow. Many ideas were shared and we hope to continue sharing with our respective wider membership online as part of our 25th anniversary 'independent but never alone' programme.

This new paper provides a meaningful and informative resource on the psychosocial literature on Usher Syndrome. Building on existing reviews, it focuses on key themes—such as emotional wellbeing, identity, social support, and future planning—and what they mean for real‑world support and services, drawing on a wide range of research and lived experience. Taking a psychosocial perspective, this overview considers Usher Syndrome holistically across the life span. With this focus

Understanding Deafblindness as a Spectrum: A New Resolution in Deafblind Awareness Month Deafblindness is unique, distinct AND also diverse. The Board of DbI and the Executive Committee of the World Federation of the Deafblind have adopted a resolution to reflect this diversity. DbI has just published it on the website - right on time for Deafblind Awareness Week. "Endorse the understanding of deafblindness as a spectrum, referring to it as the “deafblind spectrum” without in

22nd- 28th of June 2026 The theme for Deafblind Awareness Week 2026 is See Hear Us, with the aim to emphasise that each person living with deafblindness has their own strengths, just like anyone else. We also want to use stories from the community to show how experiences of deafblindness can bring unique skills, abilities and capabilities which are often under recognised. We have multiple short talks which will be posted throughout the week which emphasise this. This year we

In June 2025, after much campaigning, Deafblindness was recognised as a distinct disability in Scotland. Now the Scottish Government policy guidance is being created, and we need your help. We will be gathering lived experiences from deafblind people, people at risk of deafblindness and their families across Scotland. Hearing your experiences will: Inform Scottish Government policy guidance Improve early identification Strengthen lifelong support pathways from birth to older

A Groundbreaking Initiative I am thrilled to share the exciting news about the first "Right to Dream" Deafblind Awareness Training Programme! This fantastic initiative was delivered by Deafblind Scotland in partnership with the University of Strathclyde’s Disability & Wellbeing Service. Together, we are making strides in raising awareness about deafblindness and creating a more inclusive society! Understanding Deafblindness The first seminar was a deep dive into the history o

For Text only version please scroll down Text only version: Deafblind Scotland's Election Manifesto 2026 Deafblind Scotland is the Scottish authority on Deafblindness and the only national Charity supporting people who live with this condition. There are around 34,000 people living with Deafblindness in Scotland; their condition is at a level where one sense can no longer compensate for another. Most people acquire both sensory losses or their second sensory loss in adulthood

Living with deafblindness presents unique challenges that affect many aspects of life, from communication to social participation. These challenges often lead to inequalities and psychosocial barriers that can limit opportunities and wellbeing. A new three-year funded project aims to change this by developing a tool designed specifically to help deafblind individuals recognise and reduce these barriers through guided reflection and personalised goal-setting. This project is s

Most of us will need communication support at some point in our lifetimes. However, because there is a lack of good support, people...

Transport for Deafblind People and their Guides - thanks to the BDA for the BSL information video below. Frankie talks about his travel...

Songwriter, Jo-Anne wrote her song about deafblindness after meeting many Deafblind Scotland members. She said: “I wrote the song after meeting many deafblind people, learning about them and their stories, and how they feel about themselves; how people often don’t speak to them and ignore them, and how they are sometimes excluded from that social aspect of life. “This song hopes to bring these stories to life.” Jo-Anne's song tells the story of a young girl who tries to convi